Currently there are 28 European patients, 5 from the American continent and 1 from Africa,
in addition to about 400 Italian patients.
- July 2024 a 13-year-old boy from GERMANY.
DIAGNOSIS: TETHERED CORD SYNDROME (L2) IN A PATIENT WITH SCOLIOSIS AND DORSAL HYDROMYELIA.
The medical commission of his country considered it
impossible to perform this minimally invasive surgery in Germany, and,
considering ours a centre of excellence, it applied European law for
cross-border care. Using the S2 model, the GERMAN Health System covered the
expenses.
-
July 2024 a 33-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED CORD IN A PATIENT WITH CHIARI MALFORMATION TYPE I AND C7-D1 SYRINGOMYELIA.
- In May 2024, a 25-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CERVICAL AND DORSAL HYDROMYELIA.
- In March 2024, a 24-year-old man from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CHIARI TYPE I MALFORMATION AND CERVICAL AND DORSAL HYDROMYELIA.
- In February 2024, a 35-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH MALFORMATION CHIARI TYPE I.
- In December 2023, a 31-year-old woman from GERMANY.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CRANIAL-CERVICAL INSTABILITY.
- In October 2023, a 34-year-old man from ALGERIA.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME.
- In September 2023, a 42-year-old woman from AUSTRIA.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CHIARI MALFORMATION TYPE I.
- In September 2023, a 37-year-old woman from the USA.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH SUSPECTED EHLERS-DANLOS SYNDROME.
- In September 2023, a 25-year-old man from PORTUGAL.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH DORSAL SYRINGOMYELIA.
-In July 2023, a 35-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CHIARI MALFORMATION TYPE I.
- In May 2023, a 23-year-old woman from the USA.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH EHLERS SYNDROME- DANLOS.
- In May 2023, a 39-year-old woman from PORTUGAL.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CHIARI MALFORMATION TYPE I.
- In April 2023, a 34-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH MALFORMATION OF CHIARI TYPE I.
- In March 2023, a 34-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CHIARI MALFORMATION TYPE I.
- In December 2022, a 25-year-old man from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH LOW-LYING CEREBELLAR TONSILS (LLCT) AND DORSAL HYDROMYELIA.
- In June 2022, an 18-year-old woman from IRELAND.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN PATIENT WITH LOW-LYING CEREBELLAR TONSILS (LLCT).
- In June 2022, a 29-year-old woman from THE NETHERLANDS.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME.
- In March 2022, a 30-year-old man from GERMANY.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CERVICAL SYRINGOMYELIA AND SCOLIOSIS.
- In May 2021, a 22-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN PATIENT WITH LOW-LYING CEREBELLAR TONSILS (LLCT).
- In May 2021, a 42-year-old man from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME.
-In May 2021, a 39-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WHO HAD CRANIAL DECOMPRESSION OPERATION IN FRANCE FOR THE TREATMENT OF CHIARI TYPE I MALFORMATION.
- In May 2021, a 40-year-old man from ENGLAND.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH LOW-LYING CEREBELLAR TONSILS (LLCT).
- In May 2021, a 31-year-old woman from ROMANIA.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT UNDER CRANIAL-CERVICAL STABILIZATION OPERATION IN SPAIN FOR THE TREATMENT OF CRANIAL-CERVICAL INSTABILITY.
- In March 2020, a woman, 32 years old, from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN PATIENT WITH CHIARI MALFORMATION TYPE I.
- In October 2019, a 53-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CERVICO-DORSAL HYDROMYELIA AND SCOLIOSIS.
- In September 2019, a 35-year-old man from BELGIUM.
DIAGNOSIS: TETHERED SPINAL CORD SYNDROME (L2-L3) IN A PATIENT WITH LOW-LYING CEREBELLAR TONSILS (LLCT) AND CERVICAL SYRINGOMYELIA.
- In May 2019, a 45-year-old woman from FRANCE.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CHIARI MALFORMATION TYPE I.
- In March 2019, a 49-year-old woman from BRAZIL.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROMEIN A PATIENT WITH CHIARI MALFORMATION TYPE I.
- In March 2019, a 36-year-old man from the USA.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN A PATIENT WITH CERVICO-DORSAL SYRINGOMYELIA.
- In January 2019, the first patient from another continent was a 28-year-old woman from BRAZIL.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN PATIENT WHO HAD TWICE SURGERY IN BRAZIL FOR CRANIAL DECOMPRESSION FOR TREATMENT OF CHIARI MALFORMATION TYPE I.
- In September 2018, a 25-year-old man from POLAND.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME IN PATIENT WITH CERVICAL SYRINGOMYELIA.
- In October 2017, a 33-year-old man from HUNGARY.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME.
The medical commission of his country considered it impossible to perform this minimally invasive surgery in HUNGARY, and, considering ours a centre of excellence, it applied European law for cross-border care. Using the S2 model, the HUNGARIAN Health System covered the expenses.
- In 2015, the first foreign patient was a 36-year-old man from BOSNIA.
DIAGNOSIS: OCCULT TETHERED SPINAL CORD SYNDROME.
FROM 2010 ABOUT 400 ITALIAN PATIENTS FROM 17 ITALIAN REGIONS HAVE BEEN TREATED WITH MINI-INVASIVE SURGERY OF EXTRADURAL FILUM TERMINALE SECTIONING.
Text written in French.
In the final part of the text, reference is made to the extradural section of the filum terminale under local anaesthesia performed by me in Italy.
Italy should be proud
After years of research for the cause of my problems, there was a suspicion that I was suffering from a rare condition called occult tethered cord syndrome. Doctors in my country know very little about this condition, so we needed help getting the right diagnosis.
On the internet I found an e-mail address of Veronesi M.D. and asked him if he also treated international patients. A few days later, the answer was in my inbox: of course I treat them, what's your problem, what needs to be solved? First, he helped me get a correct diagnosis, he sent me a document describing a way to do a prone MRI, thus allowing me to do the lumbar MRI in a prone position at the hospital in my country. He was under no obligation to do so, I live in another country. I immediately understood that he is an extraordinary man. Then I went to the first checkup in Italy, and the surgery was scheduled for about a year later. The intervention is quick and painless and the hospital stay is short. My recovery was incredible, my condition improved very quickly after the surgery: there was no back pain, the pain in the legs was gone, the urological condition started to improve and I was sleeping much better than before of surgery. One year after the surgery my condition improved further, only minor urological problems are still present. It is important to note that I am 38 years old, so I am a case of adult occult tethered cord syndrome, neglected for years because the doctors in my country did not know how to help me. I didn't know what to expect, instead the surgery was effective and successful. Now my life is easier, my problems are minor after the surgery.
This is the professionalism of Veronesi M.D., he is truly remarkable, honest man, not easy to find these days. Thanks also to Sacco M.D. and all the hospital staff. Italy should be proud of you!
THE TETHERED SPINAL CORD SYNDROME OR OCCULT TETHERED SPINAL CORD SYNDROME MAY BE ASSOCIATED WITH CHIARI MALFORMATION TYPE I, IT IS NOT ALWAYS POSSIBLE TO ESTABLISH, IN A CLEAR WAY, THE BORDER BETWEEN THE SYMPTOMS OF ONE AND OF THE OTHER PATHOLOGY.
THE SYMPTOMS THAT USUALLY ASSOCIATE WITH THE TETHERED CORD OR OCCULT TETHERED CORD ARE LUMBAR OR SACRAL PAIN, IN THE LOWER LIMBS MAY HAVE PAIN, PARESTHESIA AND EASY TIRABILITY, DISORDERS IN URINARY AND FECAL SPHINCTERS MAY BE PRESENT.
FILUM TERMINALE EXTERNUM SECTIONING WITH MINI-INVASIVE TECHNIQUE IN LOCAL ANESTHESIA IS NOT THE SURGICAL TREATMENT OF CHIARI MALFORMATION TYPE I.
THE TREATMENT OF CHIARI MALFORMATION TYPE I IS CRANIAL DECOMPRESSION IN POSTERIOR FOSSA, WITH THE DIFFERENT TECHNICAL VARIANTS.
HOWEVER, IN MY EXPERIENCE, IN PATIENTS WITH TETHERED CORD OR OCCULT TETHERED CORD EVEN SOME DISORDERS TYPICALLY CONNECTED TO THE CHIARI MALFORMATION TYPE I CAN IMPROVE AFTER THE FILUM TERMINALE EXTERNUM SECTIONING.
LAST UPDATE 26th JULY 2024
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